6.7.08

Second Annual Family Festival with 5k run
Harris Road Middle School 8am-12-:00pm. Click Here for online registration.
Please email contactus@ourboysjourney.com
for more information.

 

We can never say "thank you" enough to everyone who has been gracious enough to help us not only with our son's journey through life with Batten's Disease, but to anyone who has ever taken the time to find out more, and about how they can help find a cure for this deadly disease. Here are a few links to find out more information on Batten's Disease, and a few links to find out more information on some of the people who have been very helpful in our quest to find a cure.

http://www.ninds.nih.gov/disorders/batten/batten.htm

http://www.bdfa-uk.org.uk/juvenile_short.htm

http://www.ncwish.org/

http://www.councilforchildreninc.org/

http://www.taylorstale.com/index.html

http://www.carolinavoices.org/

http://www.sublmnldesign.com/

Read our latest blog entry for the most
up-to-date information.

Read the latest research science has to offer about Batten’s disease.

Home | BDSRA | Fundraising | News | Photos
Blog | Links
Site Designed by: Sublmnl Design